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Striking Back at Stroke

A Doctor-Patient Journal

By Cleo Hutton and Louis R. Caplan

At age 43, Cleo Hutton, in the prime of her life, experienced a devastating stroke. Suddenly unable to speak, understand, or even walk, Hutton found herself struggling first to survive and then to regain her physical skills and her independence.

Striking Back at Stroke is Hutton's personal journal from this trying time, together with medical and scientific commentary by the leading expert in American stroke medicine, Louis R. Caplan, M.D.

Both authors give valuable advice--about home care, emotional support, and physical recovery--from the front lines of the battle against stroke. Their wise and experienced voices make Striking Back at Stroke an inspiring story as well as an indispensable guide for anyone enduring the changes that a stroke can bring to a life, a family, and a sense of self.

Table of Contents

Foreword   
Chapter 1: Brain Attack   
Chapter 2: Stroke: The Battleground  
Chapter 3: The War of Rehabilitation   
    
Chapter 4: Heart Surgery and Wrestling with Rehabilitation Again
    
Chapter 5: Homecoming
    
Chapter 6: On My Own
    
Chapter 7: Gaining More than the Stroke Had Taken 
      
Afterword   

Appendices 

Suggested Reading
Resources for Patients and Families
Index   

Endorsements

"...sage commentary from a health professional is unique and should provide reassurance to lay readers...I highly recommend this book to stroke patients and their families as well as to health professionals working with stroke patients."

-Jordan Grafman, Ph.D., chief, Cognitive Neuroscience Section, National Institute of Neurological Disorders and Stroke

"This is a remarkable book! Cleo Hutton documents the incredible ups and downs of repeated strokes, heart surgery, and rehabilitation."

-Guy McKhann, M.D., professor of neurology and neuroscience, Johns Hopkins University School of Medicine, and co-author of Keep Your Brain Young: The Complete Guide to Physical and Emotional Health and Longevity

"A first in resiliency books! Cleo Hutton's heroic, inspiring story shows how to go beyond stroke recovery to reach a better life..."

-Albert Siebert, Ph.D., author of The Survivor Personality, director of the Resiliency Center

Excerpts

from the Foreword

On June 9, 1992, at the age of 43, I had the stroke, followed nine days by another.  The type of stroke I had is called "ischemic," referring to inadequate blood flow to some parts of the brain.  Because the strokes were caused by a congenital heart defect, within a month I had surgery.  Although this is my personal acccount of emotional and physical recovery, more than 750,000 people are affected each year by stroke in the United States.  It is the third leading cause of death and the leading cause of major disability in this county.  Stroke leaves challenging deficits; simple tasks become, at times, extremely difficult to perform. Over the years, I have grown by learning to adapt to a new way of living.

After the stroke, questions plagued me.  As a nurse, why didn't I see the warning signs? As a middle-aged person, how could someone so young have a stroke? With no family history of stroke, why me? What part of my brain was affected? What it the meaning of the word recovery as it relates to stroke? Could it happen again?

During rehabilitation, I attemped to answer some of these questions by seeking information in medical textbooks.  I found a book--Stroke: A Clinical Approach--written by Louise R. Caplan, M.D., of Boston, Massachusetts.  This book was written for the medical community, but because of stroke deficits, I could not understand even the basic medical terminology I had once known.  I knew, however, that he held key information to understanding strokes. In 1994, I sent him a letter--full of syntax errors and misspellings that I was not aware of making--requesting his help in finding answers to my many questions.

Dr. Caplan responded, and we decided to collaborate on this book. From there, it took several more years of stroke healing and education before I could even imagine finding a publishing home for our manuscript.  In 2002, ten years after the event--yet with ten years of stroke recovery, experience, anda wealth of medical knowledge from Dr. Caplan--we give you an inside look at stroke.

The effects of stroke are challenging.  My challenge to the reader is to gain knowledge so that together we may prevent stroke.  And while we await significant research developments toward better treatments, I challenge the reader to face stroke head-on, to assist persons who have experienced a stroke to reach their full potential, to assist families who are providing care and support, and to help improve outreach measures so that every stroke survivor may have the best chance for recovery.