Caring for People with Huntington's Disease, provided by the University of Kansas Medical Center, offers helpful information for patients, families, and care givers on topics such as communication strategies, home safety, and safe sleeping arrangements, as well as links to other Internet sites dealing with Huntington's disease.
The Hereditary Disease Foundation focuses on scientific issues related to genetic diseases, especially Huntington's. Its site is particularly informative about the ethical, legal, and social issues involved with testing for genetic diseases and provides good links to related Internet sites.
Huntington's Disease Society of America (HSDA) has a site with extensive information about the disease, current research, upcoming HDSA events, and where to find help, as well as a list of publications and videotapes available from the Society.
Huntington's Disease: Hope Through Research is a comprehensive booklet, available on-line from the National Institute of Neurological Disorders and Stroke (a member of the U.S. government National Institutes of Health), covering topics including the symptoms of Huntington's Disease, diagnosis and pre- symptomatic testing, research, and community resources.